The New England Region consists of 22 Hemophilia Treatment Centers.
Since 1975, the Health Resources and Services Administration (HRSA) has funded a national network of 8 regions consisting of more than 140 Hemophilia Treatment Centers (HTCs). The HTCs provide integrated services to and increased access to care for children and adults with rare, inherited bleeding disorders.
The New England Region (NER) consists of 22 Hemophilia Treatment Centers in Connecticut, Maine, Massachusetts, New Hampshire, New Jersey, New York, Puerto Rico, Rhode Island, and Vermont.
NER works to ensure that individuals with hemophilia and other bleeding disorders and their families have access to appropriate hematologic, genetic, and other medical expertise and information in the context of a medical home model that provides family-centered, culturally sensitive, high-quality and comprehensive care.
Our Mission
Our mission is to support our Hemophilia Treatment Centers in providing access to coordinated, evidence-based care for individuals with hemophilia and related bleeding or clotting disorders, and their families.
To do so, we aim to:
- Collaborate with each of the NER HTCs, their comprehensive care teams, and their ability to provide evidence-based care to individuals
- Provide monitoring oversight, technical assistance (TA), education, and quality improvement opportunities for HTC staff on staff development issues, best practices for disease management and evidence-informed treatment guidelines, and patient and family education
- Advocate in collaboration with local, state, regional and national partners on behalf of populations served to ensure access to comprehensive care and access to adequate insurance coverage
- Advance care through research and education with our HTCs and other partners
- Collaborate with the NHPCC who aims to enhance coordination across the regions, increase the programs’ ability to respond to emerging needs in the field, and strengthen the capacity of the Regional Hemophilia Networks through targeted TA and by tracking national, regional, and patient-level data to assess patient outcomes
Our Focus
Improving health care transition for individuals with hemophilia across the lifespan
Increasing technical assistance provided to HTC staff
Improving grant activity data collection, analysis, and dissemination
Increasing outreach to underserved populations
Collaborators & Partners
